Pregnancy and the anticipation of what to expect has never been more complicated. The next decade of the genome era will see significant improvements in genetic testing and molecular and gene therapy, with in utero applications holding the potential to prevent genetic disease altogether. However, technological innovation is outpacing examination of the broader ethical and social implications and efforts to engage prospective patients and the public. Families are too often left on their own to navigate emerging evidence and inadequate support systems. ...
When most people think of genome-edited babies, they might think of editing in a test tube. But not former Kavli Center fellow and current faculty affiliate, Julia Brown. As part of her fellowship with the Kavli Center, and in her ongoing work, Julia works as an embedded ethicist and engagement practitioner in a center that is exploring the possibility of fetal genome editing, in utero. Julia shares her perspective and why engaging communities in the ethical debates around prenatal genome editing is important in this piece published in The Conversation.
Kavli Center affiliated faculty member and former fellow, Julia Brown, co-authored an opinion piece that appeared this week in the The San Francisco Standard. Co-author, Daphne Martschenko, recently came to the Kavli Center to share a preview of her upcoming book, The Acid We Inherit, and to discuss the complex history and ethics of behavioral genomics with our fellows. These topics and discussions...